Pink Daisies

Newlywed Adventures! It promises to be entertaining.

Wednesday, April 05, 2006

God's Will

Had an experience today that I'm having a hard time describing...

We had a little boy come in today and it was actually his second time but the first time I didn't hear the situation so didn't really notice anything was going on. His name is Caelin (yes, pronounced the same way and I was told it means mighty warrier when spelled that way). He's 3, but looks like a 9 month old- he's that small. He's on oxygen and the first time he came I literally thought he was a baby that was on oxygen and slept the whole time. I found out today the whole story... I don't actually know what's technically wrong, but he has 1 seizure every month and I think the main problem is that his brain is way under-developed. He's pretty much so drugged up that he just kind of lays there. They bring him in right after they give him his medicine so he'll always sleep the whole time. We talked to his sister a little today (she's 6). We asked her if she likes her little brother and if they get to play. She said "no, he doesn't have enough brain" but she said she gives him hugs and he especially likes kisses. So darn sad! Early in the discovery, my friend and I were hoping that he would get better as he grew older but it sounds like it's hopeless. I hate using those words and tried to find something better but couldn't. I know God works miracles...
It was just so sad and it struck something in me that I really can't explain. He was so peaceful and so cute! It just breaks my heart that a 3 year old is that small and unable to play and exist like a normal 3 year old.

My title, for you non-country fans is a song that was popular last year about a kid named Will who was handicapped but the singer discovered what an incredible kid he really was. She sings it like the God's will that means plan, but you discover that she means 'God's child, Will'. Great song.

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